Myths & Stigma about ADHD Causes Early Deaths

Written by Cynthia Hammer, MSW

 

There are two meanings to myths.  One is warm and fuzzy—traditional stories.  The other is deadly—widely held but false beliefs.  Certain myths about ADHD contribute to our early deaths.  

Dr. Russel Barkley, famed ADHD researcher, recently shocked the ADHD world by telling us, people with undiagnosed ADHD die, on average, 12 years earlier than people without ADHD. You may quickly think, “I can’t believe that,” until you stop and really think about it.  Our impulsive, inattentive or distractible behaviors cause car accidents and injuries which require emergency room visits. Our risk-taking traits cause us to love adrenaline-producing but dangerous sports, such as bunging jumping, motorcycle racing, white water rafting, heli-skiing, and free solo rock climbing.   Because we don’t understand why we act in foolish and unacceptable ways, we may be depressed which leads us to smoke, drink, take illicit drugs and over-eat.  Our bad habits create health problems which contribute to our early deaths.  

Did you notice that undiagnosed is bolded in the preceding paragraph?  When we are diagnosed and treated before 18, our life expectancies are longer.  Getting diagnosed and treated is key. Medication and other treatments reduce our engagement in life-threatening behaviors.    To improve our longevity, we need to be diagnosed during childhood.   

There are over fifteen myths regarding ADHD, but seven are the most harmful. These are the myths that prevent teachers from recognizing ADHD in children in their classrooms; that prevent parents from seeking a diagnosis for their child and that prevent doctors from making the diagnosis or making the correct diagnosis.

1.       If you believe ADHD means hyperactive boys, you are mistaken.  There continues to be the misconception that ADHD only occurs in boys with hyperactivity, although we know that girls have ADHD as well.  Girls usually have the inattentive type, i.e. with no hyperactivity, although some girls have hyperactivity, and some boys have the inattentive type. If teachers, parents and physicians look only for boys with hyperactivity, that is all they find.  The children of another sex or with another ADHD presentation are overlooked and fail to be diagnosed during childhood.

 

2.       If you believe you can’t be smart if you have ADHD, you are misinformed.  It is hard to understand why this myth started.  Maybe, some people believed that to get good grades in school you need to pay rapt attention.  If you didn’t pay rapt attention, but got good grades, then you couldn’t have ADHD.  Well, that illogical thinking has been disproved again and again.   Many children with ADHD do well in school, in spite of not paying attention, and they often are smart. But the myth continues to circulate, and a physician might say, “Your child is smart and doing well in school so he can’t have ADHD.”

 

3.        If you think ADHD means you can’t focus, you need to think again.  Parents have absorbed this myth. They argue, “What do you mean she can’t focus? She sits for hours playing video games.” They delay a diagnosis for their child while they hang onto their mistaken belief that if she can focus on video games, she can’t have ADHD.  The truth is, people with ADHD can focus, often hyper-focus, when something truly interests them.  In fact, they can focus so well that it is, sometimes, hard for them to switch to another activity when asked to do so.

 

4.       If you maintain that ADHD results from bad parenting, it’s time to update your thinking. This myth minimizes the broad impacts of ADHD and misrepresents its cause. i.e. ADHD can be readily fixed if the parents discipline their child more.  Why do they seek help from helping professionals when better parenting is the answer?   Parents can spend years, becoming the better parents they falsely believe their child needs, only to realize it makes little difference to their child’s challenges.  Time is lost and a diagnosis of ADHD isn’t sought.

 

5.       If you imagine ADHD isn’t a real medical condition, scientific research proves otherwise.   This widely held myth leads to stigma.  There is judgment by uninformed school personnel, friends and family members. Because they know there is nothing wrong with the child, they believe the parents shouldn’t seek medical help.  Parents, too, get caught up in this myth.  They think, “I need to discipline, nag and coerce my child more.”  Later, after they have a true understanding of ADHD and its cause, they are filled with remorse. They, unwittingly, belittled and shamed their child for behaviors he couldn’t help.

 

6.       If you believe medication for ADHD is harmful, you are causing harm with that belief.  There is no backlash for parents who give their child medication for depression, anxiety or bipolar disorder.  Yet, parents who give their child medication for ADHD, which is as much of a brain chemistry problem as depression anxiety and bipolar disorder, are criticized when they provide this proven, most effective treatment for ADHD.  Some parents are inappropriately proud of themselves, even after their child’s diagnosis.  They “help” their child without “resorting” (their words) to medication.   Usually, when they finally “resort,” they are dismayed they denied medication to their child. Getting a diagnosis of ADHD is helpful, but getting your child on the right medication at the right dose is the second most helpful thing parents can do.

 

7.       If you assume ADHD is over-diagnosed, it’s time to correct your misconception.  Some statistics show that ADHD is over-diagnosed in certain states and economic classes, while other statistics demonstrate that we under-diagnosed ADHD, particularly in those with Inattentive ADHD.  It is estimated that 90% of those with ADHD are still undiagnosed.  However, the widespread belief that ADHD is over-diagnosed could make teachers, parents and physicians reluctant to believe a particular child has ADHD, asking themselves, “Am I seeing ADHD everywhere I look?  Am I contributing to the problem of over-diagnosis?” 

 But, even clinicians who acknowledge the over-diagnosis of ADHD, warn that over-diagnosis is less worrisome than under-diagnosing children with this condition.

 The take-aways from this article: (1) get your myth-free knowledge about ADHD from reliable sources, such as CHADD, ADDitude magazine and WebMD.  (2) when you hear anyone cite one of these myths, ask “Where did you hear this?”  “Why do you believe it?”  Then provide them with the facts.  (3) Don’t delay or let anyone cause you to delay in seeking a diagnosis for your child when you suspect ADHD. 

Cynthia Hammer, MSW

Cynthia Hammer, MSW, was diagnosed with inattentive ADHD in 1992 when she was 49 years old. The following year she created the non-profit organization, ADD Resources, with a mission to educate adults and helping professionals about ADHD in adults. She ran the organization for 15 years before retiring.

During the Covid isolation she wrote a book about her life with inattentive ADHD which should be published by the end of this year. In writing the book, she was dismayed to learn that children with inattentive ADHD continue to be under-diagnosed and adults with inattentive ADHD often are incorrectly diagnosed with depression or anxiety.

She created a new non-profit in 2021, the Inattentive ADHD Coalition (www.iadhd.org), to create more awareness about inattentive ADHD and the need for early diagnosis and treatment.

https://www.iadhd.org
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Untreated ADHD = Many Problems in Life